Nora Henrikson (she/her) is an associate investigator at Kaiser Permanente Washington Health Research Institute. She leads a research portfolio focused on interventions to improve cancer care delivery, health equity, and patient outcomes.
Her current research explores methods for improving risk notification and cascading genetic testing for family members of people with hereditary cancers as well as interventions to mitigate cancer-related financial hardship. Dr. Henrikson also leads systematic evidence reviews on cancer screening and behavioral counseling with the Kaiser Permanente Evidence-based Practice Center.
Dr. Henrikson holds affiliate faculty appointments at the University of Washington School of Public Health in the Department of Health Systems and Population Health, and the Institute for Public Health Genetics. She is also an associate professor at the Bernard J. Tyson Kaiser Permanente School of Medicine.
She has a PhD from the University of Washington School of Public Health’s Institute for Public Health Genetics, an MPH from the University of North Carolina at Chapel Hill, and a BA (sociology) from Lehigh University.
Genetic testing for cancer risk, cancer-related financial hardship
Financial hardship, health equity
Quantitative, qualitative, and mixed methods; intervention design; implementation science
Systematic review and evidence synthesis; epidemiology
Social, ethical, and policy implications of genomics and precision health
Patel HV, Henrikson NB, Ralston JD, Leppig K, Scrol A, Jarvik GP, DeVange S, Larson EB, Hartzler AL. Implementation matters: how patient experiences differ when genetic counseling accompanies the return of genetic variants of uncertain significance. AMIA Annu Symp Proc. 2022 Feb 21;2021:950-958. eCollection 2021. PubMed
Henrikson NB. Experiences of social scientists in health research settings: SBM Leadership Institute. Transl Behav Med. 2020;10(4):902-904. doi: 10.1093/tbm/ibaa065. PubMed
Jones SM, Henrikson NB, Panattoni L, Syrjala KL, Shankaran V. A theoretical model of financial burden after cancer diagnosis. Future Oncol. 2020 Sep 25. doi: 10.2217/fon-2020-0547. Online ahead of print. PubMed
Lynch JA, Sharp RR, Aufox SA, Bland ST, Blout C, Bowen DJ, Buchanan AH, Halverson C, Harr M, Hebbring SJ, Henrikson N, Hoell C, Holm IA, Jarvik G, Kullo IJ, Kochan DC, Larson EB, Lazzeri A, Leppig KA, Madden J, Marasa M, Myers MF, Peterson J, Prows CA, Kulchak Rahm A, Ralston J, Milo Rasouly H, Scrol A, Smith ME, Sturm A, Stuttgen K, Wiesner G, Williams MS, Wynn J, Williams JL. Understanding the return of genomic sequencing results process: content review of participant summary letters in the eMERGE Research Network. J Pers Med. 2020;10(2):E38. doi: 10.3390/jpm10020038. PubMed
Pisu M, Banegas MP, Liang MI, Tuzzio L, Henrikson NB. How, when, and with whom should cost of care conversations occur? preferences of two distinct cancer survivor groups. JCO Oncol Pract. 2020 May 7:JOP1900726. doi: 10.1200/JOP.19.00726. [Epub ahead of print]. PubMed
Wiesner GL, Kulchak Rahm A, Appelbaum P, Aufox S, Bland ST, Blout CL, Christensen KD, Chung WK, Clayton EW, Green RC, Harr MH, Henrikson N, Hoell C, Holm IA, Jarvik GP, Kullo IJ, Lammers PE, Larson EB, Lindor NM, Marasa M, F Myers M, Peterson JF, Prows CA, Ralston JD, Milo Rasouly H, Sharp RR, Smith ME, Van Driest SL, Williams JL, Williams MS, Wynn J, Leppig KA. Returning results in the genomic era: initial experiences of the eMERGE Network. J Pers Med. 2020;10(2). pii: jpm10020030. doi: 10.3390/jpm10020030. PubMed
Opel DJ, Henrikson NB, Lepere K, Robinson JD. Progress in evidence-based communication about childhood vaccines. Acad Pediatr. 2020 Feb 10. pii: S1876-2859(20)30061-9. doi: 10.1016/j.acap.2020.02.007. [Epub ahead of print]. PubMed
Parchman ML, Palazzo L, Austin BT, Blasi P, Henrikson NB, Gundersen G, Ganos E. Taking action to address medical overuse: common challenges and facilitators. Am J Med. 2020 Feb 4. pii: S0002-9343(20)30052-8. doi: 10.1016/j.amjmed.2020.01.001. [Epub ahead of print]. PubMed
Henrikson NB, Blasi P, Dorsey CN, Mettert KD, Nguyen MB, Walsh-Bailey CL, Macuiba JA, Gottlieb LM, Lewis CC. Psychometric and pragmatic properties of social risk assessment tools in clinical settings: a systematic review. Am J Prev Med. Vol 57, Issue 6, Supp 1, p S13-S24. Dec 2019. https://doi.org/10.1016/j.amepre.2019.07.012. PubMed
Henrikson NB, Blasi PR, Dorsey CN, Mettert KD, Nguyen MB, Walsh-Bailey C, Macuiba J, Gottlieb LM, Lewis CC. Psychometric and pragmatic properties of social risk screening tools: a systematic review. Am J Prev Med. 2019 Dec;57(6 Suppl 1):S13-S24. doi: 10.1016/j.amepre.2019.07.012. PubMed
KPWHRI researchers answer questions about systematic reviews and their impact on health care guidelines.
The HCSRN conference is a venue for collaborative work to improve health and health care.
Dr. Henrikson’s Annals of Internal Medicine study describes 3 kinds of cost concerns that can affect cancer care.
Nora Henrikson discusses her latest research published in the Annals of Internal Medicine in May 2019. (Vimeo, 3:50)