Nora Henrikson, PhD, MPH
"I believe that our members are the key to helping us know how to deliver the best care possible."
Nora Henrikson, PhD, MPH
Associate Investigator, Kaiser Permanente Washington Health Research Institute
Associate Professor, Kaiser Permanente Bernard J. Tyson School of Medicine, Department of Health Systems Science
Affiliate Associate Professor, University of Washington School of Public Health, Department of Health Systems and Population Health, and Institute for Public Health Genetics
Biography
Nora Henrikson (she/her) is an associate investigator at Kaiser Permanente Washington Health Research Institute. She leads a research portfolio focused on interventions to improve cancer care delivery, health equity, and patient outcomes.
Her current research explores methods for improving risk notification and cascading genetic testing for family members of people with hereditary cancers as well as interventions to mitigate cancer-related financial hardship. Dr. Henrikson also leads systematic evidence reviews on cancer screening and behavioral counseling with the Kaiser Permanente Evidence-based Practice Center.
Dr. Henrikson holds affiliate faculty appointments at the University of Washington School of Public Health in the Department of Health Systems and Population Health, and the Institute for Public Health Genetics. She is also an associate professor at the Bernard J. Tyson Kaiser Permanente School of Medicine.
She has a PhD from the University of Washington School of Public Health’s Institute for Public Health Genetics, an MPH from the University of North Carolina at Chapel Hill, and a BA (sociology) from Lehigh University.
RESEARCH INTERESTS AND EXPERIENCE
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Cancer
Genetic testing for cancer risk, cancer-related financial hardship
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Social Determinants of Health
Financial hardship, health equity
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Health Services & Economics
Quantitative, qualitative, and mixed methods; intervention design; implementation science
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Preventive Medicine
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Evidence-Based Practice
Systematic review and evidence synthesis; epidemiology
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Public Health Genetics
Social, ethical, and policy implications of genomics and precision health
Recent publications
Jones SW, Yi JC, Henrikson NB, Panattoni L, Shankaran V. Development of item banks to assess financial hardship in cancer survivors using item response theory. Front Cancer Control. 2025 Feb 4. Vol. 3. https://doi.org/10.3389/fcacs.2025.1452970. PubMed
Petrik AF, Henrikson NB, Coronado GD, Keast E, Banegas MP. A roadmap for improving representation in clinical trials. Contemp Clin Trials Commun. 2024 Sep 23;42:101374. doi: 10.1016/j.conctc.2024.101374. eCollection 2024. PubMed
Blasi PR, Zepp JM, Scrol A, Ewing J, Anderson ML, Ralston JD, Fullerton SM, Leppig K, Henrikson NB. "I didn't have to worry about it": Patient and family experiences with health system involvement in notifying relatives of genetic test results. Public Health Genomics. 2024;27(1):150-160. doi: 10.1159/000541532. Epub 2024 Sep 30. PubMed
White LL, Sawyer JK, Zepp JM, Prado YK, Reyes AA, Maiyani M, Shuster E, Zucker R, Henrikson NB, Rope AF, Weinmann S, Feigelson HS, Ezzell Hunter J. Genetic testing uptake among ovarian cancer survivors in the Genetic Risk Analysis in Ovarian Cancer (GRACE) study. Cancers (Basel). 2024;16(14):2563. doi: 10.3390/cancers16142563. PubMed
Figueroa Gray M, Randall S, Banegas M, Ryan GW, Henrikson NB. Personal legacy and treatment choices for serious illness: A scoping review. BMJ Support Palliat Care. 2024 Jan 24:spcare-2023-004439. doi: 10.1136/spcare-2023-004439. [Epub ahead of print]. PubMed
Henrikson NB, Ivlev I, Blasi PR, Nguyen MB, Senger CA, Perdue LA, Lin JS. Skin cancer screening: Updated evidence report and systematic review for the US Preventive Services Task Force. JAMA. 2023 Apr 18;329(15):1296-1307. doi: 10.1001/jama.2023.3262. PubMed
Reddy A, Maynard C, Kaboli P, Rinne ST, Henrikson NB, Nelson KM, Liu CF, Sterling R, Wong E. Identifying individual and clinic characteristics associated with primary care provider turnover during implementation of the Veterans Health Administration Patient-Centered Medical Home. J Ambul Care Manage. 2023 Jul-Sep;46(3):221-227. doi: 10.1097/JAC.0000000000000469. Epub 2023 Apr 7. PubMed
Grabert BK, McRee AL, Henrikson NB, Heisler-MacKinnon J, Blasi PR, Norris CM, Nguyen MB, Dunn J, McKeithen MC, Gilkey MB. Feasibility of using an app-based coaching intervention to improve provider communication about HPV vaccination. Transl Behav Med. 2023 Aug 11;13(8):581-588. doi: 10.1093/tbm/ibad002. PubMed
Martucci J, Prado Y, Rope AF, Weinmann S, White L, Zepp J, Henrikson NB, Feigelson HS, Hunter JE, Lee SS. An examination of the ethical and legal limits in implementing "traceback testing" for deceased patients. J Law Med Ethics. 2022;50(4):818-832. doi: 10.1017/jme.2023.23. PubMed
Henderson JT, Martin A, Patnode CD, Henrikson NB. A synthesis of qualitative studies on patient and caregiver experiences with cognitive impairment screening and diagnosis. Aging Ment Health. 2022 Oct 3:1-12. doi: 10.1080/13607863.2022.2126431. [Epub ahead of print]. PubMed
Healthy findings blog
How do you make sense of a mountain of evidence?
KPWHRI researchers answer questions about systematic reviews and their impact on health care guidelines.
HCSRN conference
Researchers present, connect at annual conference
The HCSRN conference is a venue for collaborative work to improve health and health care.
profile
Why does Nora Henrikson study patients’ cost of treatment?
Dr. Henrikson’s Annals of Internal Medicine study describes 3 kinds of cost concerns that can affect cancer care.
video
Discussing patients’ concerns about cost of care
Nora Henrikson discusses her latest research published in the Annals of Internal Medicine in May 2019. (Vimeo, 3:50)
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