Nora Henrikson, PhD, MPH

"I believe that our members are the key to helping us know how to deliver the best care possible."

Nora Henrikson, PhD, MPH

Associate Investigator, Kaiser Permanente Washington Health Research Institute
Associate Professor, Kaiser Permanente Bernard J. Tyson School of Medicine, Department of Health Systems Science
Affiliate Associate Professor, University of Washington School of Public Health, Department of Health Systems and Population Health, and Institute for Public Health Genetics

Nora.B.Henrikson@kp.org

Curriculum vitae (CV)

Biography

Nora Henrikson (she/her) is an associate investigator at Kaiser Permanente Washington Health Research Institute. She leads a research portfolio focused on interventions to improve cancer care delivery, health equity, and patient outcomes.

Her current research explores methods for improving risk notification and cascading genetic testing for family members of people with hereditary cancers as well as interventions to mitigate cancer-related financial hardship. Dr. Henrikson also leads systematic evidence reviews on cancer screening and behavioral counseling with the Kaiser Permanente Evidence-based Practice Center.

Dr. Henrikson holds affiliate faculty appointments at the University of Washington School of Public Health in the Department of Health Systems and Population Health, and the Institute for Public Health Genetics. She is also an associate professor at the Bernard J. Tyson Kaiser Permanente School of Medicine.

She has a PhD from the University of Washington School of Public Health’s Institute for Public Health Genetics, an MPH from the University of North Carolina at Chapel Hill, and a BA (sociology) from Lehigh University.

RESEARCH INTERESTS AND EXPERIENCE

Cancer

Genetic testing for cancer risk, cancer-related financial hardship
Social Determinants of Health

Financial hardship, health equity
Health Services & Economics

Quantitative, qualitative, and mixed methods; intervention design; implementation science
Preventive Medicine
Evidence-Based Practice

Systematic review and evidence synthesis; epidemiology
Public Health Genetics

Social, ethical, and policy implications of genomics and precision health

Recent publications

Henrikson NB, Scrol A, Leppig KA, Ralston JD, Larson EB, Jarvik GP. Preferences of biobank participants for receiving actionable genomic test results: results of a recontacting study. Genet Med. 2021 Jun;23(6):1163-1166. doi: 10.1038/s41436-021-01111-2. Epub 2021 Feb 18. PubMed

Patel HV, Henrikson NB, Ralston JD, Leppig K, Scrol A, Jarvik GP, DeVange S, Larson EB, Hartzler AL. Implementation matters: how patient experiences differ when genetic counseling accompanies the return of genetic variants of uncertain significance. AMIA Annu Symp Proc. 2022 Feb 21;2021:950-958. eCollection 2021. PubMed

Henrikson NB. Experiences of social scientists in health research settings: SBM Leadership Institute. Transl Behav Med. 2020;10(4):902-904. doi: 10.1093/tbm/ibaa065. PubMed

Jones SM, Henrikson NB, Panattoni L, Syrjala KL, Shankaran V. A theoretical model of financial burden after cancer diagnosis. Future Oncol. 2020 Sep 25. doi: 10.2217/fon-2020-0547. Online ahead of print. PubMed

Lynch JA, Sharp RR, Aufox SA, Bland ST, Blout C, Bowen DJ, Buchanan AH, Halverson C, Harr M, Hebbring SJ, Henrikson N, Hoell C, Holm IA, Jarvik G, Kullo IJ, Kochan DC, Larson EB, Lazzeri A, Leppig KA, Madden J, Marasa M, Myers MF, Peterson J, Prows CA, Kulchak Rahm A, Ralston J, Milo Rasouly H, Scrol A, Smith ME, Sturm A, Stuttgen K, Wiesner G, Williams MS, Wynn J, Williams JL. Understanding the return of genomic sequencing results process: content review of participant summary letters in the eMERGE Research Network. J Pers Med. 2020;10(2):E38. doi: 10.3390/jpm10020038. PubMed

Pisu M, Banegas MP, Liang MI, Tuzzio L, Henrikson NB. How, when, and with whom should cost of care conversations occur? preferences of two distinct cancer survivor groups. JCO Oncol Pract. 2020 May 7:JOP1900726. doi: 10.1200/JOP.19.00726. [Epub ahead of print]. PubMed

Wiesner GL, Kulchak Rahm A, Appelbaum P, Aufox S, Bland ST, Blout CL, Christensen KD, Chung WK, Clayton EW, Green RC, Harr MH, Henrikson N, Hoell C, Holm IA, Jarvik GP, Kullo IJ, Lammers PE, Larson EB, Lindor NM, Marasa M, F Myers M, Peterson JF, Prows CA, Ralston JD, Milo Rasouly H, Sharp RR, Smith ME, Van Driest SL, Williams JL, Williams MS, Wynn J, Leppig KA. Returning results in the genomic era: initial experiences of the eMERGE Network. J Pers Med. 2020;10(2). pii: jpm10020030. doi: 10.3390/jpm10020030. PubMed

Opel DJ, Henrikson NB, Lepere K, Robinson JD. Progress in evidence-based communication about childhood vaccines. Acad Pediatr. 2020 Feb 10. pii: S1876-2859(20)30061-9. doi: 10.1016/j.acap.2020.02.007. [Epub ahead of print]. PubMed

Parchman ML, Palazzo L, Austin BT, Blasi P, Henrikson NB, Gundersen G, Ganos E. Taking action to address medical overuse: common challenges and facilitators. Am J Med. 2020 Feb 4. pii: S0002-9343(20)30052-8. doi: 10.1016/j.amjmed.2020.01.001. [Epub ahead of print]. PubMed

Henrikson NB, Blasi P, Dorsey CN, Mettert KD, Nguyen MB, Walsh-Bailey CL, Macuiba JA, Gottlieb LM, Lewis CC. Psychometric and pragmatic properties of social risk assessment tools in clinical settings: a systematic review. Am J Prev Med. Vol 57, Issue 6, Supp 1, p S13-S24. Dec 2019. https://doi.org/10.1016/j.amepre.2019.07.012. PubMed